The purpose of this research study is to learn more about the medical decision-making needs of patients and caregivers living with ADRD (Alzheimer's Disease and Related Dementias). People with ADRD and their caregivers face challenges that require planning and important decision-making. After a certain point in the progression of a person’s dementia, the person’s caregiver has to make decisions for them. Researchers at the Massachusetts General Hospital Frontotemporal Disorders Unit are working with caregivers of patients in the different stages of ADRD to try to learn what kinds of educational tools would be most helpful at each stage. Information from this research study may improve advanced care planning in the future and help caregivers of ADRD patients. Further care planning research and join our compensated study today! |